The Radical Importance of Boundaries and Consent

By Dáithí

For many people living with dementia, the world slowly becomes louder, sharper, and more confusing — even when words begin to slip away. But long before language, and long after it falters, the body still knows. It remembers rhythm. It remembers safety. It remembers touch.

Therapeutic massage, when offered with skill, patience, and deep respect, can be profoundly healing for people living with dementia. Not because it “fixes” dementia — it does not — but because it meets a person exactly where they are: in their body, in the present moment.

Gentle, intentional touch can help reduce anxiety, soften agitation, ease pain, and offer a sense of calm that words sometimes cannot reach. It can slow breathing. It can lower stress. It can bring a person back into themselves — even briefly — in a world that so often feels disorienting.

But here is the truth we must never shy away from:

Touch is only healing when it is consensual.

For people living with dementia, consent does not disappear — but it may need to be understood differently. Consent is not a one-off checkbox. It is a continuous conversation, expressed not only through words, but through bodies:
– a leaning in or pulling away
– a relaxed hand or a clenched fist
– a softening breath or sudden tension

Skilled practitioners learn to listen with their hands, their eyes, their whole presence.

In dementia massage, boundaries are not barriers — they are what make safety possible. Clear boundaries create trust. They allow a person to relax because they know they can stop the experience at any moment. That their body is still their own. That nothing will be taken from them without permission.

This matters profoundly.

Many people living with dementia have experienced a gradual erosion of control over their bodies — through care routines, medical interventions, or well-intentioned but intrusive help. Therapeutic touch, done ethically, can become a rare space where autonomy is restored, not removed.

This is why the work practitioners like Nicolle Mitchell are doing is so vital. Not only offering massage, but training others to practise with integrity, humility, and deep respect for consent. This work is not just about technique — it is about attunement, ethics, and care.

When touch is offered slowly, transparently, and with permission, it becomes more than massage. It becomes communication. It becomes reassurance. It becomes a reminder to the person receiving it — and to all of us — that dignity does not fade with diagnosis.

Healing does not always look like improvement.
Sometimes it looks like feeling safe.
Sometimes it looks like being believed by your own body again.

And sometimes, it begins with a single, consensual touch?

Dáithí ClaytonBelgiumthey/them
Lived-experience researcher | Writer | Speaker
Trans and nonbinary perspectives on dementia, ageing, care, and ethics
Advocating for autonomous, equitable, queer-affirming care.
Clayton, D. (2023). I Want to Be the Orchestrator of My Entire Fabulous Life.In Sandberg, L. J. & Ward, R. (Eds.), Critical Dementia Studies: An Introduction. Routledge.
Co-author — The Space Between and related queer dementia research outputs
Moderator — Queering Dementia Research Journal ClubDementia Researcher (NIHR)www.dementiaresearcher.nihr.ac.uk
Contributor & participant — international dementia conferences including:Alzheimer Europe • Alzheimer’s Disease International • Dementia Community CongressBritish Society of Gerontology • Trinity College Dublin
Co-researcher on UK & EU projects addressing LGBTQI+ inclusion, isolation & loneliness, ethics, AI, and person-centred dementia care